A peek-a-boo smile. A hug. Pictures capturing a moment.
And for Maggie and Anthony Deluna, pictures of their 2-year-old son are especially precious.
“Lincoln has a very rare genetic disorder called x-linked myotubular myopathy,” Deluna said. “It’s a neuromuscular disease that causes severe muscle weakness.”
Lincoln requires a ventilator, a feeding tube, and 24/7 care. Facing enormous medical costs, there was no budget for professional pictures, so they took cell phone photos and printed and framed them.
Enter professional photographer Sheri Kendrick and her non-profit company, "Little Light of Mine."
For the past two years Sheri has been taking pictures of chronically and terminally ill children in their homes absolutely free of charge.
For the Delunas, it was a dream come true, but Kendrick feels she is the gift’s receiver.
"Theirs is such a sacred space that I’m invited into," she said. "I feel like it’s an honor and a gift for me to be there."
"And, like any mom and dad in the world, shots of your baby are very important and always will be, especially not knowing how long he’ll be with us," the Delunas said.
Lately Lincoln has been trying to speak but the noise from the ventilator has prevented them from hearing him.
And then a sound only mom and dad could hear.
“Now say 'Mama' real loud," Deluna said. "Say it loud again. That was his voice! It’s okay. Mama. I heard you!"
And a house overflowing with love.